With a Diagnosis of Multiple Sclerosis comes fear of the unknown! Questions like: Am I going to be able to keep doing my job? What's the extent of my disability going to be? And more importantly HOW I AM GOING TO BE FINANCIALLY SUPPORTED? Just these thoughts of the unknown can be overwhelming.
There is a gentlemen in my support group who has "the invisible" symptoms who is an attorney by trade. His doctor wrote a letter to his firm saying he could only work no more than 40 hours a week, because the immense fatigue he was getting working a 60-80 hour week was no good for his health. As a result the FIRM...yes the FIRM is trying to edge him out. A young married man with 2 young children. Luckily the National Multiple Sclerosis Society has taken legal action against the FIRM. YEAH
That's just one of thousands of stories. Financial fear is a Universal fear with or without disease. But the uncertainty of not having funds for necessary items for your daily functions can be down right depressing (and we all know depression is one thing MSer's do not need).
To Empower YOU:
You might find out what your rights are with Social Security DO NOT LET THEM BULLY YOU NEVER TAKE NO FOR AN ANSWER
Maybe contact the local Department of Rehabilitation to find suitable work for your changing needs
Also contact the Multiple Sclerosis Foundation and the National Multiple Sclerosis Society to find out about financial assistance.
For durable medical equipment there's Multiple Sclerosis Foundation, National Multiple Sclerosis Society and Multiple Sclerosis Association of America
The main resource I encourage everyone to explore are GRANTS! DO NOT be afraid or intimidated applying for GRANTS. You may qualify for more than you know, DO NOT THINK IN LIMITATIONS. You don't have to be a professional grant writer. Let me say this again...YOU DON'T HAVE TO BE A PROFESSIONAL GRANT WRITER!!! You just have to be patient and diligent. The work you put into it will feel invasive and tedious but the rewards can be quite beneficial for you and your family
- Research different grant/foundations--think outside the box for example: Blindness, Spinal Cord Injury, Speech, Hearing etc.
- Get an application
- Get a letter from your doctor stating your diagnosis and your situation
- Copy of your last tax return
- Start writing your situation out! Because they all want an explanation of why you need help. Tell your story. Have your friends read it before sending it
There are tons of organizations that are out there that are designed to help you with the quality of your life.
The key is to NOT give up of get Discouraged.
Please share below organizations that have helped you out. That's purpose of this site is to help each other out!!!!!
Until Then, STAY EMPOWERED
TEAM MULTIPLE SCLEROSIS REVOLUTION