Thursday, January 23, 2014

Must Watch.....Hysterical

Why is it people with MS can be so STUBBORN?

Our ego and pride has been challenged. We'd rather do things ourselves then ask for help. When we fall, we fall silently. We'd rather do things slower than to ask for help. You know the deal. Watch this video, think about how you identify.

Tuesday, January 21, 2014

How To Take Care of Yourself During a FLARE UP

Definition of the word FLARE:
• a device producing a bright flame, used esp. as a signal or marker 

Of course their are other definitions. But I thought this a great one pertaining to MS

  • Bright flame....sound like inflammation. This a warning sign that something is being inflamed in our bodies. 
  • I love this last part as a signal or a marker.

Most who have Multiple Sclerosis would like to be in denial. Which stands for Don't Even (K)no(w) I Am Lying. We keep pushing through even though we have been given signs that "danger" is up ahead. Our brain tells us to ignore it and it's easy to forget our body has the last say. 

You KNOW the WARNING signs. Now you must take action or the body will do it for you! This is where we need to ask for, accept help, take a nap, watch TV or whatever it is to slow yourself down. Because if you don't....wherever there' a small FLARE if ignored can  become A HUGE FLARE UP.

MS does not discriminate. It affects all genders, races, religions and sexual preferences. This is a great article printed by Black Health Matters and it pertains to EVERYONE.

Thank you Roslyn Daniels, her cousin is fighting the good fight with this disease.

HELP US SPREAD THE WORD! Please send this to anyone who can benefit from these postings. Also please feel free to comment below. Together we can grow and help each other out.

Until the, Stay Empowered

Team Multiple Sclerosis Revolution

Friday, January 17, 2014

DAMMIT!!!!!!!!!! It's Not Fair

DAMMIT It’s not fair!

I have 2 other articles in the hopper, but this one had to take priority.

Last night I got a text from a friend of mine who has MS
The back-story on our friendship is because of our husbands. 2 years ago my husband was at work and their manager who said, “Arife’s wife was just diagnosed with MS and thought maybe you two could connect” .  My husband whole heartedly (because that’s the kind of guy he is) said to Arife,  “What do you want to know?” He said, “I don’t know”, my husband then said “here’s my wife’s phone number, have her call her, she would love to talk to her”. Later that day I got a phone call from her.

We talked for a couple of hours
She was in a place that I was for years. Which is “I am going to beat this”.  We had the same philosophy. I am going to be natural and holistic and I am not going to let this affect my life and no one is even going to know about it. We had a lot in common. Aside from the fact our husbands were in the same business we are also mother’s of young children and we are extremely stubborn and fighters. A story that most people with MS can relate.

Over the course of our relationship......
 I started to impart with her resources that can make her life easier. She was one of the inspirations for my cause. I didn’t realize how much information I had. I’ve had this disease in my life since I was a child. My mother was diagnosed in 1978, but was coming down with symptoms in the early ‘70’s. I know this disease from the point of a child, caretaker, patient, mother and spouse.

We’ve talked over the past 2 years by phone, even though we live about 25 minutes away from each other. About 8 months ago we finally met at an MS presentation/dinner. We gave each other the biggest hug and it was love at first site.

Over the years we’ve talked about our trials and tribulations and cried for each other as well as be a cheerleader for one another.

We were supposed to talk on the phone this week. She texted me and said, she couldn’t really talk because she took a fall and was trying to recuperate.  I told her “no worries”.

Last night 
I got a text from her “I am in the hospital, got to love MS”. I texted her back “There are easier ways to get attention. What happened?” Well, it turns out when she fell she failed to tell me that she didn’t use her cane and she had been out in the heat (it’s been in the mid 80’s here). The doctor was not pleased with her progress since Sunday and admitted her into the hospital.

MS affects no 2 people the same.
 It’s hard for anyone to understand. Because just when you think you understand it, you don’t. It’s hard for the non-patient to understand, it’s even harder for the patient to process. We want to live the lives that we did before the symptoms came. Our brain can’t remember that, it still thinks we are fine. Our gut says “Maybe we should not commit to….” And the brain, ego and pride says “No, we got this, we’ll be fine, this disease isn’t going to control our lives”.  Then after we pursue the action the body says “I don’t think so, you forgot to ask us, so now we are going to remind you who’s boss”.

It’s perfectly normal to be angry and frustrated and hate the disease

It’s not fair! No one asked for this disease. Your game plan has to change, not forgotten! It’s a choice to live in the anger and hate on a regular basis, then the disease wins. But give yourself permission to be sad on those days you deserve to be sad! Just because you are having a bad day doesn’t mean you’ll never come out of it.

Today I am sad
that my friend is a hospitalized because of this disease. But I am also grateful that with today’s technology and drugs that MS of today is not the MS of my mother’s time.

Until then stay empowered,

Team Multiple Sclerosis 

Friday, January 10, 2014

Fun, Entertainment and Education with Your Peeps............

Imagine this.........
A reason to get out of dodge and a possible tax deduction (we're no accountants here and reserve the right to say "I have no idea").

A place where where you can get away, have fun, get information that can empower you and your team of family and caregivers, entertainment and meet people all around the U.S. who have similar problems as you.

It's possible......

And it comes in the form of A CRUISE! Yes, you heard it! Sponsored by MS Foundation. A fabulous organization that is in alignment with Multiple Sclerosis Revolution's core values. They call the cruise it's all about MEE (Motivation, Education, Empowerment). 

I know it's last minute.......
The cruise departs January 25th in Miami and goes to Puerto Rico. But if you get the chance it's an amazing opportunity to connect with your "tribe".  

But don't worry if you can't make it this time

Multiple Sclerosis Revolution is going.....
Through generous donations MS Revolution will be attending this extraordinary event. We will be video taping our experience, taking pictures and reporting all the information to pass on to you the information that you need to know to help you improve the quality of your life.

If You've Been Before....
If you've been before we want to please add your comments below.

Until then, stay empowered,
Team Multiple Sclerosis Revolution

Saturday, January 4, 2014

We have more in common with other's than we know

Statistics say that over 2.5 million people (worldwide) have the degenerative disease called Multiple Sclerosis (we believe it's even larger than that). That's just patients! But it alsoaffects the spouse, children, parents, family and loved ones, leaving them to feel powerless. Why? Because they become worried and concerned about the patients well being. In 2014 almost everyone out there know's someone or knows of someone who has been affected by the disease. So if we quadruple 2.5 million it becomes 10 million people. So if you get a chance take a look at this sweet video by "Soulpancake"
We may all appear differently, but we aren't as terminally unique as we think.
Share your story down below....

Until then, stay empowered.

Team Multiple Sclerosis

Thursday, January 2, 2014

WATCH OUT 2014!!!!!!!

Watch out 2014!!!!!!!! The Unstoppable Multiple Sclerosis Revolution is breaking out this year. We have a lot of exciting plans to keep you, your family and your team of supporters

There are things we can do to improve our quality of life. Yeah, at times it can be a pain in the rear end filling out all the different forms and providing information REPEATEDLY, continuing to make phone calls to see if your “case” is being processed. But just like the lottery you cannot complain if you don’t buy ticket. Make this the year you take ACTION  on things you KNOW that can IMPROVE THE QUALITY OF YOUR LIFE. You know what it is.... people tell you about it all the time, you think about it and it never gets done. That’s why we're excited here at Team Multiple Sclerosis Revolution.

The year inspires us to take action make NEW BEGININGS
There is so much information, technology and assistance available for people whose lives who have been affected by Multiple Sclerosis, it can be tedious and cumbersome, but it's in an investment in you and your physical, spiritual and emotional well being.

Food for thought:

Write down 1 thing  you would like to accomplish this year to help Empower Yourself against the disease.

For example:

  • Explore different kinds of exercise.
  • Explore Meditation
  • Get involved in an MS Support Group
  • Be part of a fundraiser for MS
  • MS Walk 
  • Swim for MS
  • Bike For MS 
  • Become a MS Ambassador
  • Become a MS Activist
  • Find a  new doctor
  • Find organizations and charities  that you can apply for financial assistance for medical equipment.
  • get accessible equipment

After you’ve made your decision, write out a plan on how you are going to accomplish it and lastly share it with 2 friends.  Please write below what you are going to do, so you can help inspire the rest of us.

That’s the biggest gift you can give to yourself in 2014.

Our next blog is going to outline Multiple Sclerosis Revolution intentions for 2014.

Until then stay empowered,

Team Multiple Sclerosis Revolution