Wednesday, October 2, 2013

True story....the reason behind Multiple Sclerosis Revolution

(Suggested song to listen today "I'm A Survivor" by Destiny's Child)
What got me into this?

I've had this disease in my life since I was 6 years old. I watched my mother go from a limp, to using me as a cane, a cane, a walker, a scooter to totally bedridden.

It amazes me how many people don't know about resources that are available to help  not just for the patient but to help the caregivers and family members as well. Life with MS is NOT easy. A disease that its completely unpredictable and can be and incomprehensible to the people surrounding the patient. The MS patient feels guilty and  unable to explain why they could do something yesterday, but cannot do it today. It's a MADDENING DISEASE.

Yesterday I started taking an 8 week class through the National Multiple Sclerosis Society of Southern California. It's called CogniFitness. Most people who have this disease have cognition issues. At the end of the class a very frail older woman in a wheelchair said to me "excuse me, could you meet my daughter", of all the people in the room she asked  to talk to me!?! This woman had no idea I had created this forum to  educate, inspire and empower MS Patients, Caregivers and Families.. Her daughter daughter was in a wheelchair as well, but much worse than her mother. At that moment I was so touched and honored they had the courage to open up to me and ask me about services and support groups that can help them. How did they know that I had information that could enhance their lives, even if for a little bit? That's why I created this forum. I've been down this journey and I want to help other's with information that I've found, that few other people know about.  What touched me even more was that my mother and I both have MS and it took courage and strength to reach out. All I can say is that there are no MISTAKES in this life.

 There are so many incredible resources out there, but people don't know how to look for them. That's what this site is about, just to name a few of the obvious ones are National Multiple Sclerosis Society, Multiple Sclerosis Foundation and Multiple Sclerosis Association of America and the services that they can help with the stresses of daily living for the entire family. They have:

  • counseling services
  • financial assistance,
  •  disabled equipment,
  •  webinars,
  •  educational classes, 
  • teleconferences
  •  and so much more.. 

As this site continues I'll tell you more. The important thing to know that there is help and untapped resources, you never even knew about there. Yes, does it take some time and research, but the rewards could help to improve your quality of life and to be honest, who doesn't want that?

You can help too! Please respond below if you know any resources that can help improve other's lives affected by MS. Until then, STAY EMPOWERED.

Team Multiple Sclerosis Revolution

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