Thursday, November 14, 2013
Wednesday, November 13, 2013
Check this out
Out of the "orange colored sky" ..... find out how the Digmann's met!
To Buy their book........
or on Amazon
In this video you'll hear stories you probably can identify....
It's only 5 minutes....Check it out
Monday, November 11, 2013
Part II "Meet Dan"click here to watch (4minutes long)
Who's Dan Digmann?
Co-Author of "Despite MS, To Spite MS" along with his wife Jennifer who both are affected by the disease of Multiple Sclerosis.
Look at previous email
All of the Digmann's information and how to buy their book is located in the previous blog!
Are an awesome couple and they are truly living "Despite MS, To Spite MS"
Join the revolution in supporting them!!!!!!!!!
Wednesday, November 6, 2013
Today Meet Jennifer click here to view
One day I was trolling around on twitter looking at different MS groups. In my search I found a posting from @DanJenDig. I investigated who they were because their picture looked as if it were a book cover. Then I looked at their website and I heard part of their story. But more importantly I LOVED the title of their book "Despite MS, to Spite MS". I found it completely in alignment with Multiple Sclerosis Revolution's Mission.
I contacted them......
They were so lovely and couldn't be nicer or sweeter! I told them I wanted to feature them on my first interview. They were so accommodating and generous.
This being Team Multiple Sclerosis Revolution's first interview via Skype the quality of the video is a little grainy during this series of interviews with the Digmann's.
"Despite MS, To Spite MS" is a lovely, sweet book about a husband and wife who are both affected by Multiple Sclerosis.
It's inspirational, funny and thought provoking.
A portion of their book profits goes to the National Multiple Sclerosis Society and Camp Courageous a camp for individuals with disabilities and respite time for caregivers.
You can contact them:
Face Book: Dan and Jen Digmann
Friday, October 11, 2013
Did you know.........I didn't
In February of 2013 I went to the Abilities Expo in Los Angeles, California. I highly recommend going. It's worth the adventure. You'll learn about services and equipment that you never knew would be available to you and that you could qualify for benefits. They have classes and workshops. If you have problems walking and stamina Pride Mobility had scooters available to use. It's a chance to educated and more importantly be part of a community. I met a Vietnam Veteran named Larry who had the same scooter and offered to let me borrow his charger because mine went DEAD (no one's fault but mine). And guess what in a city as big as Los Angeles I've seen him scootering around at least twice!
I found lots of great resources. I'll share with you one today is the United Spinal Cord Injury Association. MS patients qualify for their services because MS affects the spinal cord. Go figure! I met this lovely lady, Lynn Murray who gave me that information she is the founder of the Placerville Mobility Support Group.
Her newsletters are filled with great information. This one is a survey you fight find helpful about Medicaid https://www.unitedspinal.org/survey/medicaid.html?utm_source=NewsletterMailingList&utm_medium=email&utm_campaign=Newsletter+2013+08
Check out her website and see if the United Spinal Cord Injury Association can help you out.
If you have any other resources please post them below in the COMMENTS....
Until then, STAY EMPOWERED!
Team Multiple Sclerosis Revolution
Wednesday, October 9, 2013
.........in the coming week I will have the privilege to interview the amazing Jason DaSilva. His story is amazing. Inspiring for anyone afflicted and not afflicted by the disease of MS.
I am a huge fan! His movie is amazing, forget the fact he has Primary Progressive MS, he is an artist, husband and father, despite and his disease. 80% of people who have Multiple Sclerosis have Relapsing Remitting, Jason is part of that 15%. In less than 8 years this disease has overtaken his body, but not his spirit of creativity
Please check out his website to find a screening near you and there is also opportunity for you to sponsor your own screening. It's an opportunity to Educate, Inspire and Empower MS Patients, Care givers, Families as well as anyone who is looking to get prospective on their lives. A beautiful story about perseverance and passion.
Check out the site at www.WhenIWalk.com.
Until then STAY EMPOWERED,
Team Multiple Sclerosis Revolution.
Friday, October 4, 2013
Suggestions to help yourself:
- Jigsaw Puzzles
- Crosswords puzzles
- Search and Find Games
The important thing is to keep your mind active, not 24 hours a day. But just as important physical exercise we need our mental exercise as well. Until then..... Stay empowered!
If you have any suggestions please, please comment below...this is how we can all grow.
Team Multiple Sclerosis Revolution
Wednesday, October 2, 2013
What got me into this?
I've had this disease in my life since I was 6 years old. I watched my mother go from a limp, to using me as a cane, a cane, a walker, a scooter to totally bedridden.
It amazes me how many people don't know about resources that are available to help not just for the patient but to help the caregivers and family members as well. Life with MS is NOT easy. A disease that its completely unpredictable and can be and incomprehensible to the people surrounding the patient. The MS patient feels guilty and unable to explain why they could do something yesterday, but cannot do it today. It's a MADDENING DISEASE.
Yesterday I started taking an 8 week class through the National Multiple Sclerosis Society of Southern California. It's called CogniFitness. Most people who have this disease have cognition issues. At the end of the class a very frail older woman in a wheelchair said to me "excuse me, could you meet my daughter", of all the people in the room she asked to talk to me!?! This woman had no idea I had created this forum to educate, inspire and empower MS Patients, Caregivers and Families.. Her daughter daughter was in a wheelchair as well, but much worse than her mother. At that moment I was so touched and honored they had the courage to open up to me and ask me about services and support groups that can help them. How did they know that I had information that could enhance their lives, even if for a little bit? That's why I created this forum. I've been down this journey and I want to help other's with information that I've found, that few other people know about. What touched me even more was that my mother and I both have MS and it took courage and strength to reach out. All I can say is that there are no MISTAKES in this life.
There are so many incredible resources out there, but people don't know how to look for them. That's what this site is about, just to name a few of the obvious ones are National Multiple Sclerosis Society, Multiple Sclerosis Foundation and Multiple Sclerosis Association of America and the services that they can help with the stresses of daily living for the entire family. They have:
- counseling services
- financial assistance,
- disabled equipment,
- educational classes,
- and so much more..
As this site continues I'll tell you more. The important thing to know that there is help and untapped resources, you never even knew about there. Yes, does it take some time and research, but the rewards could help to improve your quality of life and to be honest, who doesn't want that?
You can help too! Please respond below if you know any resources that can help improve other's lives affected by MS. Until then, STAY EMPOWERED.
Team Multiple Sclerosis Revolution
Thursday, September 19, 2013
Write it on a post it all over your house and put it as a reminder on your phone. Why? Because YOU are worth it!
Thursday, September 12, 2013
Part of our mission:
Most of the information that's available out there is very technical, confusing and overwhelming. Our goal is try to break things down and make it more understandable. We hope you enjoy the video.
Wednesday, August 28, 2013
"Be the Change YOU Wish to See in the World? Ghandi
Wednesday, August 21, 2013
We'd love you to be part of our REVOLUTION....JUST SIGN UP BELOW